Why I’m crowdfunding my mental health book & what happens when you pledge

As many of you will know by now, by the amount of times I have (very excitedly) tweeted about it, I have written a whole entire book on my life with mental illness.

It documents my life with OCD, health anxiety, BPD and bipolar disorder. It also talks about things that come with these things – like suicidal and intrusive thoughts, self harm, panic attacks, mania and depression, mood swings, toxic relationships, obsessions and compulsions and more.

I started writing it shortly after a nervous breakdown. It saved me and I think it has what it takes to save other people, too.

It talks about my darkest times. Why I ended up being under the Crisis team, my nervous breakdown, wanting to end my life and how OCD led me to washing my hands sixty times a day and getting down on my hands and knees in the road in the dark to search for something that wasn’t there.

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But alongside all of this, I also talk about how to survive with mental illness. And how I’m still surviving. That’s another important aspect of the book. It’s not a how-to-guide or a cure. It’s about going THROUGH mental illness. Because I think it’s much more relatable, because living with mental illness is about managing and surviving. There’s always going to be bad days but it’s about living for the good days, too.

Though it’s not a guide, there is some guide-y stuff in there. Like how to seek help for your mental health and make sure you get it. How to go to A&E for your mental health. How to open up to family and friends. Whether medication is right for you or not. How to get through the bad days. There are also lists: lists on good self-care tips, lists on dealing with intrusive and suicidal thoughts, and lists on how to work out exactly what is going on in your head.

What I’m really hoping for with this book is that people will realise that there is someone who ‘gets it’. Who’s there for them and understands them and believes them. I also think it’ll help people come to terms with their illnesses – while also helping people discover what they might be suffering from, but haven’t yet been diagnosed with.

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But as you guys know I am crowdfunding this book. And, without going too much into detail, this is because literary agents didn’t know where to market the book considering it’s memoir mixed with well-being, and traditional publishers suggested marketing it as a how-to-guide. Which, of course totally missed the point of what I’m doing. And so I’m crowdfunding it, because I believe the fuck out of this book. I’ve worked so hard on it and I hope people will support me and believe in this book as much as I do.

I understand people might be hesitant, which is why I’m just going to list a few things to reassure you what happens with this crowdfunding:

– You are not donating. Every ‘pledge’ is actually a pre-order. When you pledge you are buying the book and the rewards that come with it.

– All of the pledges actually go towards the publishing of the book, which is why it needs funding – because publishing costs money! 

– The difference with what I’m doing with Unbound and buying a book once it’s published is that you get lots of rewards. Your name in the back of the book as a reminder that you helped make it happen, signed copies, the eBook included with every sale and more.

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– And this is the most important question I’ve been hearing that needs to be answered: WHAT HAPPENS TO MY MONEY IF IT DOESN’T GET PUBLISHED?! 

If the book very sadly doesn’t get published (which I’m hoping with your support won’t happen), you get your money back. Simple. You don’t lose out on anything. If it happens you get a shiny new book with your name in every single edition of the book – even the ones that will go on sale in book shops after it’s published – and if it doesn’t happen you get a refund.

So I hope I’ve answered any questions you have. I’ve said it a million times but I really hope you’ll support me with this because it means the world to me, I’ve put my heart and soul into it – but most importantly, if you’re currently struggling, this is for YOU.

To support me in this journey, please consider pledging. The sooner this book gets funded, the sooner a shiny, lovely, beautiful copy with your name in the back arrives at you door. Click here to pre-order.

 

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I’m doing what I can but I still feel sad

This blog post is going to be a bit of a funny one because I’m not really sure what I’m going to write. I haven’t really planned anything out I just felt the urge to write.

I’m feeling pretty down at the moment. I have this overwhelming sadness that just won’t leave.

As it’s Mental Health Awareness Week, I wanted to write a little bit about how I’m feeling.

Do you ever just feel… really empty? Like the whole world is going on around you and you’re just stuck, alone and isolated. Like everyone’s smiling and you’re just trying not to cry. But you don’t quite know why.

Nothing really major has happened recently. I’ve been struggling with my self esteem but that’s just a part of it. For the past week, I’ve just been feeling really sad.

I can’t quite explain it. It’s like I have this urge to cry but no energy to do so. I have this horrible feeling in the pit of my stomach that is filling me with anxiety and unease.

I am having severe guilt over past mistakes and questioning every motive.

I won’t lie to you, the past few days I have been having really nasty thoughts. Like I just want to give up on life. But then I hold onto the fact that feelings will and do pass, and I’m just trying to wait it out.

Today was a particularly bad day, mainly because I had a lot of abusive messages from people I don’t know calling me out for using a certain phrase in regards to men’s mental health. It really upset me because I genuinely do try to do my best to raise awareness of mental illness. I’d love to hold my head high and say it didn’t get to me but I’m only human, and of course things upset me – especially when I get told I am to blame for increased suicide rates when I’m struggling myself.

I’m not going to let it put me off raising awareness, but I won’t lie, the comments were really upsetting and I just wanted to throw my phone away.

Of course, that’s not the reason for my sadness. It’s been going on on and off for months, and I’ve learned to just deal with it.

I’m doing what I can to keep myself busy. I’m working, I went to the BAFTAs on Sunday and I’m going to a launch party at Twitter HQ tomorrow night which I’m excited for. But the problem is, these are all just distractions.

In the moment, I’m excited and enjoying myself. But I know that when each experience ends, I just fall back into the realm of feeling like I want to burst into tears.

I wish I had a narrative for this post or at least an ending for it but I really don’t… I’m just quite down at the moment.

And I just always want to be honest with the people who follow me for my mental health posts.

It’s so easy to be positive and I mean what I say when I offer advice and motivation, sometimes it’s just hard to take that advice yourself.

And at the end of the day, I’m only human, things aren’t always going to be sunshine and smiles.

How I feel about my body after years of hating it

I have never been happy with my body. Ever. I don’t think there’s ever been a time I’ve looked in the mirror and not picked out something I don’t like about myself.

I have always struggled with my image and have had body dysmorphia for as long as I can remember, which slowly turned into bulimia.

I was bulimic for three years. It was a struggle, but not just because I felt I was suffering alone, but because when I eventually spoke out about what I’d been going through, nobody believed me because I wasn’t stick thin. That’s the thing with eating disorders, people only associate it with anorexia. They don’t seem to realise that people of all sizes can struggle with eating disorders; that bulimia and binge eating disorders are very, very real.

I only stopped making myself sick after vomit got caught in my chest cavity and my lung collapsed. It was very scary, enough to make me want to stop sticking my fingers down my throat.

Instead, I started limiting my calories. I’d reward myself when I got through the day on less than 600. It wasn’t healthy. I lost weight, to the point I was stick thin, a size 6 and the lowest weight I’d ever been.

Going from a size 12 to a size 6, I still looked at myself and thought I was fat. I would stand in the mirror and poke at my belly, sigh at my legs and feel like I was going to cry. I thought I was hideous. There was a little while where I would cover my mirror with a blanket so that I didn’t have to look at myself.

It turned out that I hadn’t lost all of the weight because of unhealthy eating – though I’m sure that didn’t help; but because I was actually suffering with ulcerative colitis, a form of inflammatory bowel disease. I’m not going to go into detail with this post, if you’d like to read more you can find it in various posts within the ‘invisible health’ category.

Due to the ulcerative colitis attacking my colon so severely, I had to have it removed, and I was given a stoma bag for 10 months.

While it was great to feel healthy again, I piled on the weight. It was as if my body had missed so many nutrients that it was indulging in sucking up as many as it could. I quickly gained two stone, going back up to a size 10.

A size 10, a very healthy weight, I still felt fat. In fact, I felt huge. It was somewhat shocking to watch as my once stick-thin legs levelled out to chunky thighs (I’ve always been bottom heavy, thanks genetics), and my hips got wider.

After 10 months with a stoma bag, I had it reversed. It didn’t go to plan, and I was sick for 11 days. I didn’t eat for 9 of them. Therefore, I lost a lot of weight again. I told myself I’d try to stick to this weight but my mental health got in the way (hello bipolar disorder, BPD, OCD and health anxiety) and I was put on a load of different weights that made me eat excessively and gain a ton of weight.

I am now back up to a size 12 and the biggest I’ve been in a long, long time.

Size 12 isn’t big. I know that. But there’s definitely a startling difference between how I used to be.

I still haven’t accepted my body. But you know what I’ve learned? I will always wish I was as fat as the first time I thought I was fat. I look back at my size 6 body that I thought at the time was chunky and think ‘Wow, I was way too thin’.

I look back at my size 10 figure and think ‘Wow, I wish I looked like that again’.

And now, though I’m not happy with my figure, I’ve decided enough is enough. I am going to stop hating on my body.

You know why?

Because my body has been through so much. It has fought for me. It has fought to live.

It has been through horrendous surgery. It has fought pneumonia, a collapsed lung, a chest drain, a removed appendix, inflammatory bowel disease, a nearly-perforated bowel, a bowel removal, a stoma bag and a reversal. It’s also consumed a whole load of medication.

So you know what? I’m going to give my body a break. Because it deserves it. I’m not going to get anywhere hating it, and so I’ve decided to start embracing it.

Sure, I still want to change. I’m still going to the gym and I’m trying to change my diet (she says, as she delves into a packet of Haribo), but right now I’m just going to feel myself.

For the first time in a long time, the past 5 weeks I have been posting full-length body photos. Something I hated doing even at a size six. And I love the photos. I feel good in myself. I don’t look at myself and hate what I see.

I know I’ll never be fully happy with my body. But I’m going to be comfortable with it. I’m going to start accepting it.

It’s the very least it deserves.

A mental health update: I’m struggling right now

I haven’t posted on here in a little while, but I decided I probably should, because I’ve written a lot about mental illness on Twitter recently and I wanted to write an update on what is currently going on with my mental health.

The past couple of weeks have been some of the hardest of my life. And that’s saying a lot.

Just six weeks ago, I felt like I was getting my life back on track. Throughout December and January, as I’ve mentioned in some of my videos, I had a really horrendous bout of health anxiety. I was unable to function and genuinely felt like my life was never going to get better. That I was never going to come out of it. But I did. Everything was going well for a little while. I was enjoying work, I was being given opportunities, my relationship was great, and everything just felt like it was falling into place. So why am I back in such a horrible place once again?

When it comes to other people’s mental health, I find it easy to remain positive and offer advice. Because I really do believe, when it comes to other people, things do get better. But when it comes to myself, I just lack the motivation to think this way. And it’s difficult.

I’m currently under the Crisis team once again because my mental health is a total shambles. My OCD and health anxiety are out of control, the intrusive thoughts are non-stop and I don’t remember the last time I had a decent night’s sleep without nightmares without taking Zopiclone.

My mind is constantly racing a mile a minute and to be honest, I’ve felt like I really couldn’t cope. Just two weeks ago, the Crisis team were coming out to me everyday, I took some time off work, I was unmotivated, I was comfort eating non-stop, I stopped wearing makeup, stopped doing my hair… I just stopped everything that made me feel somewhat good about myself, because the fact is; I didn’t feel good about myself. I felt terrible. And I still do.

The past few nights I have spent every evening on the phone to Samaritans, because when Crisis aren’t here, I feel like my whole world is collapsing around me and I just need to talk and to get it all out of my system. Samaritans are great because they’re simply there to listen and not advise… which is exactly what you need sometimes – for someone to just listen.

For the second time in my life, I have thought very seriously about not wanting to be here anymore. For me, this was terrifying. But I am just so exhausted of feeling afraid of my own head, like I’m going crazy, like I’m going to have a nervous breakdown – which technically I did last week when I found myself completely detached from myself for a day – that I felt that I just didn’t want to live like this anymore. Luckily, I have Crisis, I have a psychiatrist and I have a CBT therapist. I am supported. But the problem with the mental health system is that help doesn’t come to you immediately. It all takes time. You have to wait to receive help. I understand that the system is overstretched and underfunded and there just aren’t the resources to offer everyone immediate help – but I have really felt for the past couple of weeks that that’s what I need. That I can’t wait any longer because I can just feel my mental health deteriorating.

Last week I had my Setraline upped, which I am taking for OCD. However, I have to be careful because as many of you will know I also have bipolar disorder, and anti-depressants can send you into mania. Despite taking mood stabilisers and anti-psychotics, I am currently hypomanic as well as being depressed – which means I am in a mixed state bipolar episode, meaning you have hypomania/mania and depression at the time. This can be very dangerous, as you act very impulsively.

Since my dose was upped, I feel absolutely awful. I have constant nausea and headaches and frequent nightmares. Last night I woke up every two hours from a different nightmare, one of which has left me feeling incredibly disturbed and has actually triggered harm OCD – where you worry about causing harm to yourself or others around you. Basically, I’m just having a bit of a rough time at the moment.

I’m not sure what I hope will come out of this post. I just haven’t blogged on here in a while and I thought I’d take some time out to do so and to update you all on what’s going on.

The positive thing here is that I am still here, I have a very supportive family, boyfriend, friends and I am very lucky to have a very understanding editor who has been a great support. And so I just want people to know that I’m not alone in this.

But I also just wanted to be honest, because I’ve had a few messages from people asking me if I’m okay and telling me they appreciate my honesty – so here’s me, being completely honest.

Right now, I am miserable, struggling and every day is a mission to get through. But as time goes on, I’m getting little bits of hope back that have been missing over the past couple of weeks. I also want to thank everyone who got involved with my #WhatYouShouldKnowAboutMentalIllness hashtag, and to let those who watch my videos know that I do intend to record more – but right now I’m under too much pressure to think about opening up about mental health on camera. I hope you can understand. Thanks to everyone who has been messaging me with support, it’s more appreciated than you’ll ever know.

OCD and the need to confess things

I recently posted a poll to Twitter asking people what they most wanted to know about my OCD: The fear of contamination, checking things, health anxiety or obsessions of guilt.

I started writing a post about all, but it turns out people are most interest in the latter; guilt. And so, I thought I’d write a whole post about it.

Believe it or not, guilt is a big part of OCD. I know, it was news to me at first, too.

In an article on BeyondOCD, it explained that doubt and guilt are two of OCD’s main features.

It reads: ‘While it is not understood why this is so, these are considered hallmarks of the disorder.  Unless you understand these, you cannot understand OCD.’

The author adds: ‘In the 19th century, OCD was known as the “doubting disease.”  OCD can make a sufferer doubt even the most basic things about themselves, others, or the world they live in.

‘Doubt is one of OCDs more maddening qualities.  It can override even the keenest intelligence.  It is a doubt that cannot be quenched.  It is doubt raised to the highest power.’

Doubt comes in many forms within OCD, often we just don’t realise this. When it comes to OCD, people have their own ‘thing’. Some people wash their hands multiple times, others check the doors and ovens to make sure no harm comes to their home while they’re out. These aren’t just rituals, they’re doubts. Every time we re-check that door, we’re doubting whether it was really locked. Every time we wash our hands again, we’re doubting they were clean enough the first time we washed.

However, doubt doesn’t have to be about a physical thing – and occur emotionally, too. That’s where the guilt comes in.

A big part of OCD is feelings of intense guilt and the need to confess things. I didn’t realise this until recently. I’ve been struggling with guilt and I came across an OCD forum from people living with the same thing. When I put it all in place now, it makes sense.

When I was around seven or eight, I was on a family holiday and I was in a tent with a male family member – who was a year younger than me – playing mums and dads, as you do when you’re little. Half a year later, I broke down to my dad about it. I felt it was wrong. He was a boy, I was a girl, I was only little but I understood at the time that girls fancy boys. I worried whether playing mums and dads had meant there’d been something sexual in it. Of course, there hadn’t been – I was eight, for god’s sake. But that didn’t make it any better.

Even throughout my teenage years – and now – this is a memory that makes me feel uneasy because it’s one that made me feel so dirty at the time. Like I was bad.

The problem is, this is a memory I’d even as a little girl spent time obsessing over. I realise now that this is a symptom of OCD. We forget this because we spell ‘OCD’ out by its letters. We forget that it stands for Obsessive Compulsive Disorder. ‘Obsessive’ being the most prominent word in this case.

Just recently, at age 22, my guilt has been triggered again. I won’t go into it, but something happened a while ago that was completely out of character for me and I’ve spent the last week playing it over and over in my head, thinking about what I’d done and what I could’ve done differently. I’ve played various scenarios over in my head and it’s got so bad that I’ve actually started to convince myself of things I haven’t actually done.

Seriously, I’ve spent the evening crying because my head is telling me I’ve done something that I have absolutely no recollection of. I know in my rational head it’s not real, but my irrational head says otherwise.

In a study by Italian researchers in the journal Clinical Psychology & Psychotherapy, published in September 2016, it suggests that those with OCD may perceive guilt to be more threatening than most people do – leading them to finding it totally intolerable.

Those who feel intolerable guilt get rid of it the only way they know how: by confessing. OCD confessing is like washing your hands twenty times in a row. It’s a short sense of relief each time.

This is something I’ve been trying to control recently. I’ve been confessing and confessing and confessing to things that make me feel guilty. The guilt goes for a little while, before it hits hard once again with yet another thought to feel guilty about.

It’s a vicious cycle, and one that’s predominant in OCD – it starts with an intrusive thought, it’s followed by a ritual and it’s eased with a short sense of relief.

It’s a cycle that’s not easily broken, either.

I wish I had some advice for others going through these overwhelming feelings of guilt. But the only advice I can offer is not mine – it belongs to some wise woman on an OCD forum.

When you have an awful sense of guilt over an uncontrollable thought, ask yourself these questions:

What do you have to feel guilty about?

Is the guilt ‘real’ or is it your anxiety talking? AKA, is this a new sense of guilt that’s come out of nowhere, or have you actually done physical wrong?

Why do you feel guilty?

Assess the guilt. It’s likely you feel guilty because you have OCD and you are giving importance to your intrusive thoughts.

Who benefits from you confessing?

It may seem like a relief to you to get it all out, but it’s only temporary. Is confessing going to help you, or the person you’re confessing to, long-term?

Remember, you have OCD. OCD does crazy things, and the only way we can control it is learning to cope. Coping with guilt is hard, but it can be done. At least, that’s what I’ve heard – and what I’m hoping.

January 2018 has been the worst time for my mental health

I’ve had a really shitty start to 2018.

I started it in A&E. I spent New Year’s Day there in crisis after struggling with health anxiety for a couple of weeks.

Long story short, I was convincing myself I was going get really sick. I was panicking about blood clots and meningitis and other illness that could have really serious consequences.

It sounds daft, I know it does. But that’s health anxiety for you. You manage to convince yourself something really bad is going to happen to you. And then you spend hours of every day checking your body for symptoms and Googling anything you come across.

I know where my health anxiety comes from. Twice I’ve been left in critical condition due to medical negligence, and so now I don’t trust anyone when I feel I’m getting sick – and I worry about the consequences.

In the past couple of weeks I’ve been to the doctors six times and had three sets of blood tests. I had an infection for a little while and I worried about sepsis. I was having nightmares every night about it, waking up shaking in cold sweats, having intrusive thoughts and visions I can’t even begin to describe because they’re too terrifying.

I was under the Crisis team for three weeks, had all of my medication upped and I spend every evening feeling like a zombie because of how much I’m taking at the moment.

Things got so bad the other night that I was in A&E because I accidentally overdosed – aka I took too much medication. I didn’t want to die, I just wanted my head to shut up.

I don’t know why or how, but my health anxiety has been pretty non-existent over the past couple days. This is because now my worries have shifted to guilt over things I’ve done in the past. I have this horrendous feeling in my stomach that won’t go. It’s making me feel sick and want to cry all of the time because I feel so horrendously guilty. I’ve been confessing things over and over to my partner, things that don’t even need to be said simply because I need to get them out of my system.

Regardless of my health anxiety or guilt, I know that they’re both part of another condition I live with: OCD. Health anxiety falls under the OCD spectrum due to its obsessive tendencies – and guilt and the obsession to confess does too. So really, over all, it’s my OCD I’m struggling with at the moment.

There’s no end to this story. It’s not even a story, really. It’s just an update as to where I’m at.

This is it.

Mental illness f*cking sucks

I just cried for five minutes because I’m exhausted.

I only cried for five minutes because I  am tired of crying. It makes me even more tired, and I’m tired of that, too. I haven’t admitted it properly to anyone just yet, only voicing my feelings here and there in short tweets, but the last three weeks have been hell. I have struggled to cope. I’m still struggling to cope.

In fact, I’m struggling so much that I have questioned whether there’s any point continuing if things don’t get better. The scary thing is that right now, it feels like things won’t get better. The even scarier thing, however, is that for once, telling myself that nothing would be better than this was the first time I really meant it.

There’s been many a time where I’ve said ‘I don’t want to be here’ when my emotions got too much. But there was always a small fraction of me that didn’t mean it. 10% of me was just crying out for help. But that 10% has now turned to 5% and even that can feel a struggle to hold onto.

For the past three weeks, I have been suffering with health anxiety. I usually hate that word, suffering. But this time I mean it. I have suffered. Deeply.

I have been panicking every day about becoming seriously sick. I have worried all throughout the day, my body filled with nerves and adrenaline, my heart beating fast, my stomach in knots. I’ve tried to drown out the feelings with medication, but the intrusive thoughts and the images are still there.

For a while I just couldn’t get them out of my head. Normally, when my head gets too loud, I escape in my dreams. But I can’t even do that now, because every dream is replaced with a nightmare. Each night a different dream, with similar themes. They’re terrifying. I have broken sleep, waking up and falling back into a nightmare over and over again. I just want it to stop.

The problem is that no matter how many times I tell myself I’m okay, a voice in my head tells me I’m not. And I feel these false physical symptoms that confuse the hell out of me. If Google tells me a certain illness will make me feel a certain way, I’ll start to feel these symptoms. It’s hard to tell what’s real and what’s not.

I know deep down where my fears stem from. I’ve had bad health a couple of times, and both times have lead me to critical condition because symptoms had gone dismissed, unrealised and ignored. And now, when my mind is at its worst, I panic that I’m getting sick but nobody’s seeing it, and that nobody will realise until I’m at my worst. This is terrifying.

It’s fucking awful spending every day worrying about bad things happening.

I have bipolar disorder, borderline personality disorder, OCD and health anxiety. The last two are somewhat the same thing. Obsessive, intrusive thoughts. I’ve felt all kinds of emotions due to my mental illnesses, but nothing like I feel with health anxiety.

I don’t know why I’m writing this. Perhaps I want to get across that health anxiety is a real thing. I do. But perhaps I also want to get things out of my system because I feel it’s what I need.

Regardless of the reason, all I know right now is that mental illness fucking sucks.